Being diagnosed with cancer is a scary time in your life, and in the lives of your loved ones. If you are angry, scared, just want to scream, do it! It’s okay, just don’t stay there. I can’t stress this enough. Please take a look below at the Journey toolbox. This is the toolbox that will come in handy when you go to doctor appointments, infusion treatments, radiation, procedures and more.

 

• Before visiting your doctor, write down any questions you may have. It is common to forget these questions due to anxiety once at the doctor's office. If possible, bring your caregiver for additional support and perspective, as it is easy to focus narrowly when speaking with the doctor.  

• Always get instructions on your care plan, appointments, scans and any procedures you may be scheduled for. 

• Prepare a bag for your infusion treatments, as these sessions can be lengthy. Ensure you have your preferred items to keep you comfortable and occupied while sitting. Consider including a favorite blanket, reading materials such as a book or electronic device, and some snacks or a small meal. The duration of your treatment will determine the appropriate items to pack. Although infusion centers provide warm blankets, snacks, and beverages, their offerings might not suit your preferences. 

• Journaling is an effective method for expressing emotions and maintaining organization. Journals can be purchased both online and in stores. A link to journals under products you may need has been provided to assist you in finding one with ease. 

• Set alarms on your phone to remind you to take your medication at home. Use pill boxes to track your medications. These methods can help ensure you do not forget to take your medication.  

• Do not hesitate to contact your physician if you are experiencing issues. They are available to assist you. Please be assured that your request does not cause any inconvenience to them. Your physician will be one of your greatest supporters throughout your cancer treatment process. 

• In a separate notebook, you could put all your questions, appointments, medications and anything else you need to keep the information in one place.  

• During cancer treatment, you will discover your own methods to navigate the necessary steps, aiming for security and comfort. 

• Most importantly, remember that you have the ability to manage your health effectively. You, alongside your caregiver, are your most reliable advocates. Always keep in mind that your opinions and concerns are valuable in this process. 

• When you are feeling good, don’t forget to take care of yourself, don’t feel guilty. Live your life, take that trip, have fun! 

• Eat, Eat, Eat…when you can of course. It is important to pack on weight as you begin your treatments because symptoms from the treatments include nausea, vomiting and unfortunately diarrhea. You need to do your best to get ahead of the coming weight loss. My husband ensured I ate regularly before and during treatments. My weight increased from 150 pounds to 175 pounds, but after the last treatment, my weight decreased to 130 pounds. Keep your doctor aware of all of your plans and changes. 

• If you need help with insurance or any type of medical equipment, doctor offices generally have a social worker or someone who can help you with this request. If you need this assistance, please ask if they have anyone to help you.

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This is a scary time for everyone involved. It’s easier said than done but don’t let cancer become your focus. Live your life like you don’t have cancer when you can. Remember, you are in control, not cancer!